April 11th, 2024 – Sessions

https://www.youtube.com/watch?v=f21RBKctLgg

Conference video approximate timestamps

00:04:00          Opening remarks by conference organizers

00:15:00          Lifetime achievement award: Rafael Blesa

Session 1: Pathophysiology of DSAD and ADAD

00:24:00          Lisi Flores Aguilar: Adults with Down syndrome display blood-brain barrier damage at advanced stages of Alzheimer’s disease neuropathology.

00:36:00          Agnès  Pérez-Millan: Galectin-3 is upregulated and correlated with MRI findings in ADAD and genetic Frontotemporal Dementia.

00:47:00          Aina Comas Albertí: Whole blood differentially expressed genes in mutation carriers of autosomal dominant Alzheimer’s disease.

00:57:00          Marie-Claude Potier: Amyloid-β peptide signature associated with cerebral amyloid angiopathy in familial Alzheimer’s disease with APPdup and Down syndrome.

01:09:00          Claudio Cuello. Could the status of the NGF metabolism predict preclinical Alzheimer’s pathology in Down Syndrome?

01:23:00          Questions

Session 2: Clinical and neuropsychological presentation and non genetic modifiers of the phenotype

02:34:00          Benjamin Handen: AT(N) status and longitudinal changes in cognition in adults with Down syndrome.

02:48:00          Laura Videla Toro: Bridging the Gap: Understanding The Clinical and Cognitive Expression of Alzheimer’s Disease in Down Syndrome.

03:00:00          Jason Hassenstab: Developing a digital cognitive platform for Down syndrome-associated AD research: The ARC-DS Study.

03:17:00          Lídia Vaqué-Alcázar: Generational changes in DS: impact on intellectual disability, Alzheimer’s disease progression, and cognitive trajectories.

03:30:00          Sigan Hartley: Timing of Cognitive Decline in Down Syndrome Alzheimer’s Disease.

03:39:00          Questions

Flash talks

04:03:00          Samuel Morabito: Spatial and single-nucleus transcriptomic analysis of DSAD and sporadic AD.

04:11:00          Charlotte Jacob: Correlations between monoaminergic biomarkers, classical biomarkers and the BPSD-DSII behavioral scale in Down individuals with and without Alzheimer’s dementia.

04:17:00          Isabel  Barroeta: The Down Syndrome Biobank Consortium: an initiative to advance research on Alzheimer´s disease in Down Syndrome.

04:25:00          Íñigo Rodríguez-Baz: Predominant Visuoperceptual Disfunction in a Patient with Down Syndrome associated Alzheimer’s Disease.

04:33:00          Natalie Edwards: Cerebrovascular disease and neuroinflammation enhance the classification accuracy of AD-related clinical diagnostic conversion in adults with DS.

04:39:00          Sara Gutiérrez Fernández: Molecular basis of clinical onset in familial Alzheimer’s disease (FAD).

04:45:00          Fernando Gonzalez-Ortiz: Plasma p-tau217 is a severity and progression biomarker in Niemann-Pick disease type C.

04:52:00          Charlotte Johansson: Electrophysiological biomarkers in autosomal dominant Alzheimer Disease.

04:58:00          Laura del Hoyo Soriano: Improving IQ measurement in DS by using true deviation from population norms with the Kaufman Brief Intelligence Test.

Session 3: Biomarkers 1

06:10:00          Sandra Gimenez: AD effects on sleep in adults with DS.

06:22:00          Janna Dijkstra: Clinical and fluid biomarker characteristics of ADAD in Dutch memory clinic.

06:32:00          Michael Okafor: Reducing the production of toxic Aβ peptides in Alzheimer’s disease: a new therapeutic strategy?

06:41:00          Lajos Csincsik: Retinal and Choroidal Vascular Changes as Potential Biomarkers for AD in Individuals with DS: A Cross-Sectional Study.

06:54:00          Johannes Levin: Lewy-Body co-pathology in the context of Alzheimer Disease originating in a genetic β-amyloid trigger.

07:08:00          Questions

Session 4: Biomarkers 2

07:36:00          Erik Johnson: CSF Proteomics Define the Natural History of ADAD.

07:48:00          Laia Montoliu-Gaya: Proteomic Analysis of Cerebrospinal Fluid in DS: Uncovering Shared and Distinct Pathological Alterations in Comparison to Late Onset and ADAD.

07:57:00          John Ringman: The A431E PSEN1 mutation arising as a founder effect in Jalisco State in Mexico: from clinical presentation to an animal model.

08:11:00          Lisa Vermunt: Within-individual trajectory of plasma GFAP in dominantly inherited Alzheimer disease.

08:18:00          Nicolas Barthelemy: Soluble tau phosphorylation and MTBR-tau243 changes in autosomal dominantly inherited AD. Prerecorded talk

08:30:00          Questions

April 12th, 2024 – Sessions

https://www.youtube.com/watch?v=eskABv_4n_M

Conference video approximate timestamps

Session 5: Neuroimaging

00:08:00          Brian Gordon: Comparisons of Tau PET Imaging in Down Syndrome and Autosomal Dominant AD.

00:20:00          Patrick Lao: Longitudinal changes in neuroimaging biomarkers of small vessel disease by sex and APOE genotype.

00:31:00          José Enrique Arriola Infante: Pattern of brain metabolism (FDG-PET) in individuals with DS. Association with sociodemographic variables and Alzheimer´s disease stages.

00:43:00          Alejandra Morcillo-Nieto: Medial Temporal Lobe Volumes as Biomarkers for Early Alzheimer’s Detection in in Down Syndrome.

00:57:00          Beau Ances: Cortical thickness along AD continuum in Down syndrome.

01:12:00          Questions

Session 6: Modelling (Natural history models)

01:39:00          Juan Fortea: APOE4 homozygotes: A new member of in the genetically determined AD familiy.

01:52:00          Raquel Sánchez-Valle: Cortical Asymmetry in individuals with Autosomal Dominant Alzheimer’s Disease.

01:58:00          Eric Rubenstein: A population study of Alzheimer’s dementia in Down syndrome.

02:21:00          Lucia Maure Blesa: Occurrence and description of epilepsy in adults with DS.

02:34:00          Eric McDade: DIAN. 

02:44:00          Questions

Session 7: Clinical trials in presymptomatic / at risk individuals of genetic AD

03:40:00          Michael Rafii: Clinical Trials Targeting AD in DS.

03:55:00          Laurent Meijer: Phase 1 clinical study of leucettinib-21, a Dyrk1a kinase inhibitor drug aiming at the correction of cognitive disorders.

04:12:00          María Carmona-Iragui: A phase III, randomized, double-blinded study of the efficacy and safety of LEvetiracetam to prevent Seizures in Symptomatic Alzheimer’s Disease in adults with Down syndrome: the LESS-AD trial.

04:35:00          Beatriz Bosch: Autosomal Dominant Alzheimer’s Disease Barcelona Cohort.

04:43:00          André  Strydom: The H21 consortium – enabling treatment trials for Alzheimer’s disease in Down syndrome.

04:57:00          Questions

Session 8: Collaboration and networking opportunities for AD research in individuals with Down syndrome and ADAD.

06:09:00          Laurie Ryan and Erika Tarver. NIH Funding Opportunities.

06:17:00          Angela Bradshaw. Collaborative engagement with patient organisations in EU-funded research.

06:30:00          Bessy Benejam. DABNI and Horizon 21 experience

06:42:00          Jason Hassenstab. DIAN experience and Multisite International R01 in DS

06:47:00          Questions

07:38:00          Panel discussion: “Ethical considerations and implications of AD research in individuals with Down syndrome and ADAD with the approval of new treatments”.

Natalie Ryan. UCL Queen Square Institute of Neurology; London, UK

Alberto Lleó. Hospital of Sant Pau; Barcelona, Spain

Ann Cohen. University of Pittsburgh; Pittsburgh, USA

Shahid Zaman. University of Cambridge; Cambridge, UK

08:40               Closing remarks and summary of conference findings by conference organizers